03 Jun With your help, Nieve will get the buggy she needs
NIEVE was discharged from Newcastle’s Royal Victoria Infirmary on Tuesday.
Sadly, hospital visits are a regular occurrence for the severely disabled youngster, and this latest trip was for an operation to prevent her knees and hips from dislocating.
Nieve was diagnosed with the very rare Rett Syndrome, which affects development of the brain, when she was three and it has led to a range of health complications, including epilepsy, scoliosis and repeated chest infection which often lead to pneumonia.
She has never been able to sit up, stand or talk.
She lives with mum Kristine, 31, dad Daniel, 34, and sister Josie, two, and the Ryton family are hoping June’s Go Bananas appeal will help the Chronicle Sunshine Fund give them a new lease of life.
Kristine, a mental health nurse at Bensham Hospital, said: “We know this is a life-limiting illness so Nieve won’t live as long as other girls but we don’t really know what the future holds.
“Her complex medical problems mean she is in hospital every three months or so, and many of those trips are by ambulance.
“But it doesn’t matter how many times she goes in, as a parent you never get used to that. It is tough.
“Fortunately, this operation went well. The doctors had prepared a bed in intensive care in case she responded badly but it wasn’t needed.”
The Flints have asked the Sunshine Fund – which provides specialist equipment to disabled North East children – for an all-terrain buggy so Gibside School pupil Nieve can get out and about easily.
The buggy, which also doubles up as a bicycle trailer, costs £2,576 and features a cushion, sun canopy, rain cover, headrest and support bars.
Kristine explained: “Three years ago, the Sunshine Fund helped us buy a hydro bath for Nieve and last year my husband and I took part in the Great North Run in aid of the charity, to give something back.
“We are so grateful they are helping us again. This buggy will mean the family can do many more activities together.
“To think that people are raising money for us is quite an overwhelming feeling. When you are a mother or father of a child who is severely disabled you can feel very alone, but to know there are people out there who care means so much. It is amazing.”
The Go Bananas fundraising drive runs throughout June and aims to raise £50,000 through a range of activities, events and donations.
To donate to Go Bananas, visit justgiving.com/Go-Bananas-June