11 Nov Winn win as Eva gets special bed she needs
A LITTLE girl with a rare genetic disorder can now sleep safely at night thanks to fund-raisers who have bought her a specialist bed.
Ava Holden, from Newcastle, was at risk of falling out of her normal bed at her Kingston Park home which meant sleepless nights for mam Jill.
The five-year-old suffers disturbed rest and wakes regularly, so Jill was on constant alert as her daughter’s condition, including development delay and vision problems, means she has no danger awareness or reflexes to stop herself falling.
A specialist bed was not available through a home loan service, due to Government funding cutbacks, but a Newcastle firm of solicitors took up the case and helped The Chronicle’s charity to save the day.
Winn Solicitors sponsored the Sunshine Fund’s Great North Run vests and marquee this year – for the second time running – and also entered a team in the event to raise money for Ava to have a £2,700 specialised bed.
The electrical, adjustable bed has sides and padding to protect Ava, while it also can be adjusted to a height to save her mam’s back when she lifts her daughter.
The delighted mother thanked the Sunshine Fund and Winn Solicitors for providing the bed.
“It will make such a massive difference to our family but most importantly to Ava,” she said.
Collette Adair, human resources manager at Winn Solicitors, said: “The Sunshine Fund is a charity that’s always close to our hearts and it’s great to be able to help change the lives of children like Ava.
“The staff are always eager to get involved with charity events, and the Great North Run is a fantastic opportunity to raise money for such a worthy cause.
“Without charitable support so many of our region’s disabled children would go without the specialist equipment they need, so it’s amazing to see the enthusiasm from our staff when it comes to helping to raise money.”
Rebecca Jama, fund-raising coordinator for the Sunshine Fund, said she was grateful to the company for its support again this year and in helping provide Ava with her bed.
“We raised over £15,000 from the run and could not have done it without them,” she said.
She added that the charity still has places left for next year’s Great North Run, which will take place on September 10, 2017, and appealed for would-be fund-raisers to get in touch to help children like Ava.
Anyone who would like to run in the event for the Sunshine Fund is asked to email email@example.com