13 Jun Give Freya the chance to live life to the max and excel at school
“Freya has just embraced who she is.”
They are the words of a very proud mum who watches her little girl smile every day no matter what life throws at her.
Freya Carr-Wright was born with Charge Syndrome, a rare genetic condition that affects all aspects of her life such as her sight, hearing, balance, breathing and growth.
She’s endured multiple operations since she was born premature at 28 weeks including a tracheotomy, an ileostomy and two open heart
surgeries at just three months old.
But you’d never know it as the
five-year-old beams from ear to ear at everyone she meets.
Mum Bev Wright, 44, is full of pride as her daughter “lives each day to the fullest” despite being classed as deaf and blind.
Bev added: “She’s such a force of nature. Her teachers recently said that her cohort see her as a fun girl just like the rest of them.”
Freya, from Winlaton, was
diagnosed three months after her early arrival and soon began a string of scary operations.
Bev and dad Lee Carr, 42, watched on tentatively as their first born
battled her way through her early life but she came out stronger than ever.
Now at Swalwell Primary School, Freya loves learning but her difficulties means she has to work in a
different way to other pupils.
She works with an iPad which suits her visual needs but she can’t take it home at the end of the day.
Having an iPad Pro at home would make the world of difference to the family and allow her to get on with her life like any other kid can.
Freya has to hold the screen close to her face to see it so the iPad Pro is ideal as it is high definition.
She is one of the 10 children picked by the Sunshine Fund’s Go Bananas appeal which raises money throughout June to buy specialist equipment for kids in need.
Bev said: “It would mean she could do her homework at home in a format which is accessible to her and her needs. It would really help her education development.
“It would also mean she could enjoy some activities suitable to her in her down time. We’d even be able to link it up to her hearing aid.
“She’s going into Key Stage 2 and the work load will increase. It takes Freya three hours to write an A4 piece of paper but because she’s determined she will sit and do it.
“She could easily do this work in an iPad and send it to her teacher. I don’t want there to be any questions about whether or not she can
cognitively keep up because I know she can, she just needs to do it
differently to other children.”
An iPad Pro comes in at £379 – a stretch for her full-time carer mum and sales manager dad who also have Heath, four, to take care of.
“To me, this has a huge impact on how I see Freya’s future. It means she can stay in mainstream school,” Bev added.
“It would open up another world for her. It’s also a communication tool to keep in touch with friends and family and watch the
programmes she likes without straining her eyes.
“It would just be a massive relief
in terms of the concern I have
about how we will support Freya’s learning.”